Twin to Twin: Emma & Emily

When you dream about having children, you never think about the possible turbulence along the way.  No one mentions the possible infertility, miscarriages, birth defects, and rare syndromes that can cause a normal pregnancy to become the stuff of nightmares.  No one mentions how quickly it can go from fine to horrible.

Over the past few days, I have seen the horrible nightmare side of pregnancy.  I have heard the phrase “twin-to-twin transfusion syndrome” a little too much for anyone’s sanity.  Twin-to-twin transfusion syndrome (TTTS) is a rare syndrome that affects identical twins where the blood supply is shared among the twins and the blood is transferred back and forth.  In this syndrome, one twin gets too little blood and one twin gets too much blood.  In the first 24 weeks of gestation particularly, one or both twins may die.  To make matters worse, there is nothing that the parents can do and nothing that can prevent this in the future. 

After a bit of googling, I found a foundation that is devoted to helping those suffer TTTS losses and for advocating for cures for this syndrome. They take donations too.

If I seem to have lost my Christmas spirit, it’s because I’m mourning my would-be nieces, Emma and Emily.  Emma and Emily were still-born on Sunday, December 11 at 22 weeks.  They will never know how much their family loves them.

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3 thoughts on “Twin to Twin: Emma & Emily

  1. Pingback: Presents for Baby Ellie « Adventures in Futility and Knitting

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